This is the final post in a four-part series to help shed light on this commonly misdiagnosed form of dementia.
You are not alone.
Whether you have Lewy Body Dementia or are caring for someone with this disease, there are several wonderful tools and resources out there to support you. Never hesitate to ask for help and continue educating yourself with the most up-to-date information available.
Here are some excellent resources to keep at your fingertips:
Lewy Body Dementia Association – This is an invaluable resource for all things Lewy Body Dementia, from facts, symptoms, case studies, treatment, personal testimony, education, and beyond. The Association also includes a Scientific Advisory Council who provides the most up-to-date medical and research information on the disease.
Alzheimer’s Association’s “Safe Return” Program – A nationwide ID system designed to assist in the safe return of people who become lost when wandering. Enrollment includes an ID bracelet and cards, labels for clothing, and registration in a national database with access to a nationwide alert system.
Support Groups – We strongly encourage caregivers and family members to utilize support groups, whether it be an in-person group such as our monthly support groups at Autumn Leaves, or an online community specifically for caregivers and family members of Lewy Body Dementia patients. We also invite you to attend any of our Autumn Leaves Support Groups – find a schedule of dates and location here.
National Institute on Aging – A wealth of educational resources for both professionals and family members.
Michael J. Fox Foundation For Parkinson’s Research – As the symptoms and diagnoses are often co-mingled with Parkinson’s Disease, this is an excellent resource for the latest research on Parkinson’s and Lewy Body dementia.
